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Author Topic: Unsatisfactory Diabetes Care for my Kindergartener  (Read 2143 times)

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Offline 4MYlittleGuy

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Unsatisfactory Diabetes Care for my Kindergartener
« on: September 11, 2014, 09:06:49 PM »
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  • Hello all,
    My son was diagnosed with T1D at 3 1/2 years old. He began preschool at the age of four and enjoyed a full day of school with the assistance of his God Sent Pre-K Teacher. She did his carb counts, BS checks and injections at lunch time. As well as  treated lows and contacted me with any questions or concerns.
    Fast forward to this school year. He's now in a public school for kindergarten. He now wears a CGM and is on the Omnipod. His school houses over 1100 students and has only ONE, I repeat, ONE, person responsible for administering ALL medicine to the entire student body, including MY little guy.  They also want my 5 year old to roam the halls of that huge building ALONE, to have his insulin administered before lunch time. He will not be escorted to her office and she will not come to his classroom to get him.  There is also a restroom conveniently located INSIDE of his kindergarten class, to keep the small children from having to venture off into the rest of the building. However, my son will be required to walk alone to the main office to receive his insulin, and then to the lunch room to join the rest of his class. They keep trying to reassure me that it has been done before and that he'll know exactly where to go after a while. This is still unacceptable in my opinion. I also have the availability to be present during lunch time so that i can administer his insulin myself. The school does not want parents in the building during the beginning of the year for fear that it would interfere with the teachers ability to  bond with the students.
    My question now is; should I place him elsewhere?  My only other school option will allow me to be present but does not have anyone trained to handle T1D, which means I will be tethered to the building ALL day until they have someone trained.
    I need advice. Please HELP!

    Offline Nyssas_mom

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #1 on: September 11, 2014, 09:13:28 PM »
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  • First, you need to get a 504 in place. All of these issues can be addressed in the 504. Be sure to include that an adult is going to have to view his CGM to determine if it is safe for him to make the trek to the office on his own. Trust me...in a short amount of time, I'm sure that he'll be able to find his way to the office safely, as long as he is in range and the CGM indicates that he is not falling rapidly.
    Parth, mom to 2 daughters, Valkyrie (non-d) age 17 and Nyssa (age 11) dx 11/22/05...pumping w/ Animas 2020 since January 14, 2008. Upgraded to Animas Ping, October 25, 2010.  Started Dexcom G4 on September 6, 2014. Married to {He has a name}  Kenneth since 1995. Vineland, New Jersey

    Offline 4MYlittleGuy

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #2 on: September 11, 2014, 09:24:00 PM »
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  • Thanks a lot. I'm going to discuss a 504 plan tomorrow.

    Offline SarahMay

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #3 on: September 11, 2014, 09:26:33 PM »
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  •  :welcome:

    You've found a great place for advice. I don't have expertise in this area, but the other parents here are sure to have just the information you need!
    Sarah - wife to Aaron, mom to
    Matthew (9) non-D
    Jonah (8) DX 02/05/14 (Animas Ping, Dexcom)
    Isaiah (8) DX 01/10/13 (Animas Ping, Dexcom)
    Gideon (5) non-D


    Offline oddangela

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #4 on: September 11, 2014, 09:53:40 PM »
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  • 504  504  504

    Also get his endo on board for the medical instruction portion.  What you list is not acceptable and your child has a federally mandated right to a free and appropriate education.
    Angela- Mom to S- 8/9/04 (dx 5/4/11)  G- 6/4/08 and L- 4/3/12 and W- 3/18/15

    Offline kcbscrapper

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #5 on: September 11, 2014, 10:43:59 PM »
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  • Yep get a 504... And be sure to go in knowing what YOU want for YOUR child.   Students( in my opinion)should be tested in the classroom...no need to miss out on time in the classroom.   

    Offline MelindaC

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #6 on: September 11, 2014, 11:40:02 PM »
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  • I agree you need a 504 ASAP. In kindergarten the nurse came to the classroom or an aid walked her to the nurse. I made it very clear that it was unacceptable and dangerous for her to be walking the halls alone.

    Google some sample 504 plans so you can get an idea of things you might want to include.




    Mom to :
    Quentin 14 Non D
    Bethany 12 Non D
    Nathan   9 Non D
    Makenna 7 dx 3/22/11 Pumping Medtronic

    Offline oddangela

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #7 on: September 11, 2014, 11:53:26 PM »
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  • Also contact your local ADA (American Diabetes Association) office.  They have a legal division with experience.
    Angela- Mom to S- 8/9/04 (dx 5/4/11)  G- 6/4/08 and L- 4/3/12 and W- 3/18/15

    Offline andrea

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #8 on: September 12, 2014, 05:18:29 AM »
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  • Have your Endo add into the medical order (DMMP) about having a buddy to go with to the nurses office at all time.  This way it won't be negotiable like in a 504. If they refuse then they are going against medical orders

    Mom to Annelies, 14 (Dx 18 Mar 08~Pumping MM Oct 08-May 12, Omnipod May 12-Aug 13. tSlim Aug 13+ ~Dexcom Oct 11), Katy, 18 (non-D) and Jory (non-D/US Navy)
    God created wine to keep Army Wives from taking over the world
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    Offline gsmama

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #9 on: September 12, 2014, 06:14:18 AM »
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  • In first grade my son went to the nurse for everything too. He always, always had a buddy for nurse, and bathroom trips.
    I agree with everyone else, do some research on DMMP, 504 and the ADA Stay Safe in School campaign.
    Your district should also have a 504 Coordinator, so if you feel like you are being ignored by school officials you can call the 504 Coor. directly.
    Leslie in New Jersey: mom to ava 11 (non-d) and giovanni 13 (dx'd T1D 7/25/07 and Celiac 1/14)

    Offline Mich*09

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #10 on: September 12, 2014, 08:26:32 AM »
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  • All great advice.  Also, your local JDRF should have an outreach coordinator.  Ours is wonderful and even offered to attend our first 504 meeting with me.  I completely agree with you that his current level of care by the school is unsatisfactory.  Good luck!
    Michelle
    Mom to - Jordan 22, Grant (19 dx 9/17/09 MM Revel 6/1/10), Brett 16

    Offline HD

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #11 on: September 12, 2014, 08:58:03 AM »
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  • Even in middle school & high school, my son has someone go with him to the nurse if he is not feeling well.  In elementary school, it was an adult.  It has always been in his 504 plan.  Good advice from Andrea to get the doc to include this in his orders.
    Heather
    mum to Campbell (18) dx on 20 July 2007 Pumping with the t:slim & Dexcom, and Tom (14) non-D 



    Offline Swoopie

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #12 on: September 12, 2014, 09:36:30 PM »
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  • I don't send my first graders anywhere alone.  It is in our school procedures to always send a buddy with a student. 
    Robin, 34, PA
    Dx Type 1 6-6-05
    Pumpin' 2-6-06 Minimed Revel 723
    CGM 5-9-10
    Claire Elizabeth born 3-25-12
    Ian James born 12-19-14

    Offline amyand toni

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #13 on: September 20, 2014, 04:55:44 PM »
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  • We had a 504 plan that always included, she was never to go to nurses office alone, and that was 12 years ago, and the school was always very helpful.

    Offline Tiffany***

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    Re: Unsatisfactory Diabetes Care for my Kindergartener
    « Reply #14 on: September 20, 2014, 11:18:39 PM »
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  • Also contact your local ADA (American Diabetes Association) office.  They have a legal division with experience.

    I was going to suggest this.  I am a trained safe at school advocate.  From my experience it can be helpful to have the ADA on your side.  Something about having a person from the ADA sitting with you makes the school pay more attention. 

    You can call the 800 # which is 1800diabetes  They will request you fill out the paperwork.  This is to create a record.  This starts your process if for some reason you end up needing to litigate.  Then call the local office and let them know.  Ask to meet with a school advocate. 

    http://www.diabetes.org/living-with-diabetes/parents-and-kids/diabetes-care-at-school/
    Tiffany mom to 4.  T. 9-00 non-d  V. 12-02 dx 12-08  H. 3-07  E. 9-10



     


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