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Author Topic: DC Update  (Read 1154 times)

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Offline KaelynsMom

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DC Update
« on: July 17, 2015, 09:26:12 AM »
So we are back from DC. It was such an amazing experience and not sure I could put it all into words. I wish all of you could have been there with us. I will just give the highlights and then if anyone wants to talk more feel free to PM me here or on FB.

1) Being in a room with so many people there for the same mission.
2) Getting a hug from Derek Rapp (total fangirl moment!)
3) Dinner the first night- it was a chorus of dex alarms and beeping- and no one cared!
4) meeting the Celebrities who were SO down to earth and great with the kids. Adam Lasher really IS as cool as you think (and funny) and Austin Basis was so so genuine.
5)Getting to meet Jamie, Ernie and Kate -ok so this isn't CC related but it WAS one of the highlights. Kaelyn cried when we had to say good-bye and they took us to see the Lincoln Memorial!
6) Dr. Insel knowing who we were by sight!
7) Getting a private R&D update with Dr. Insel during our meeting with Congressman Reed
8) Congressmen Reed showing Kaelyn the picture he has of them in his office all the time.
9) The capitol is awesome and amazing (it has a subway underneath it with a little train station!)
10) The senate hearing-amazing
11) Nicole Johnson teaching Kaelyn the "here she is Miss America" song- she is amazing and totally does not get enough credit

I am not sure Kaelyn completely understands just how amazing it was- she just loved meeting the other kids- I hope I can keep the memories alive for her until she can understand.
-Stephanie  Mom to Kaelyn, age 7 DX 10/31/10




Offline andrea

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Re: DC Update
« Reply #1 on: July 17, 2015, 09:39:14 AM »
I'm so glad you got to do this... I love finally  having a first degree connection to it

 <bclap> <hug>

Mom to Annelies, 14 (Dx 18 Mar 08~Pumping MM Oct 08-May 12, Omnipod May 12-Aug 13. tSlim Aug 13+ ~Dexcom Oct 11), Katy, 18 (non-D) and Jory (non-D/US Navy)
God created wine to keep Army Wives from taking over the world
My blog

Offline PattyC

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Re: DC Update
« Reply #2 on: July 17, 2015, 10:08:19 AM »
Sounds awesome! <bclap> <t-up>
Patty, mom to Matthew 18, dx 12/05, pumping with MM Revel 723. (St. Louis, MO area)

Offline shortstopmom

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Re: DC Update
« Reply #3 on: July 17, 2015, 10:27:51 AM »
Sounds like an awesome experience!
Nancy
DX March, 1971 (45 years). Pumping with "Forrest Pump" for 10 years.  Lovin' my Dexcom G4 "Lt Dan".  Mom/Stepmom of 7, grandma of 10.

Offline Mich*09

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Re: DC Update
« Reply #4 on: July 17, 2015, 10:45:39 PM »
What a wonderful experience.  We heard Nicole Johnson speak a bit over a year ago at a conference.  I remember thinking at the time - "really, Miss America,  so she has t1, big deal".   But she was very impressive and very inspirational with a great message.


Michelle
Mom to - Jordan 22, Grant (19 dx 9/17/09 MM Revel 6/1/10), Brett 16

Offline gsmama

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Re: DC Update
« Reply #5 on: July 19, 2015, 12:39:11 PM »
Sounds so awesome!
Leslie in New Jersey: mom to ava 11 (non-d) and giovanni 13 (dx'd T1D 7/25/07 and Celiac 1/14)

Offline JamieP

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Re: DC Update
« Reply #6 on: July 20, 2015, 07:01:46 PM »
Hi Again!! I just want to say that meeting Stephanie and Kaelyn was THE highlight of our stay in DC.  It was just amazing to meet them in person. It was as if we had been great "real-life" friends for years and years- so easy and comfortable. And Kaelyn!!  I told Stephanie that I will vouch for her anytime someone thinks she is just "Facebook bragging" about this girl. She is everything we have been told and then some- just amazing. So so smart....so precocious....so articulate....so sweet...and so so cute!!  She is going places and just the best little T1 advocate we could hope for!!

Thank you, Stephanie, for squeezing us into your fully-booked schedule!! 💙
  • Jamie Perez
Jamie Perez
Mom to Tyler, 16yrs, T1dx 4/21/12
Dexcom G4 11/1/12; Omnipod 2/1/13
Mom to Kate, 11yrs, NonD

Offline andrea

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Re: DC Update
« Reply #7 on: July 21, 2015, 07:44:45 AM »
Is think Katy and Annelies are still plotting how to kidnap her...they adore Miss K

Mom to Annelies, 14 (Dx 18 Mar 08~Pumping MM Oct 08-May 12, Omnipod May 12-Aug 13. tSlim Aug 13+ ~Dexcom Oct 11), Katy, 18 (non-D) and Jory (non-D/US Navy)
God created wine to keep Army Wives from taking over the world
My blog

Offline KaelynsMom

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Re: DC Update
« Reply #8 on: July 21, 2015, 09:15:34 AM »
Is think Katy and Annelies are still plotting how to kidnap her...they adore Miss K

They can borrow her any time!! They know how to keep her alive!  ;D
-Stephanie  Mom to Kaelyn, age 7 DX 10/31/10




Offline stefaniemsmith1

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Re: DC Update
« Reply #9 on: July 28, 2015, 11:12:37 PM »
 <t-up> <t-up> <t-up>

Wife to my hero, Kevin
Mom to Mackenzie (14, T1, DX 9/17/12, Pinging Green)
& Kayleigh (7, T1, DX 11/20/12, Podding)
www.prncsstefy.blogspot.com
http://www.facebook.com/GigglyGirls



 


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