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Author Topic: So Mackenzie learned a hard lesson  (Read 2323 times)

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Offline stefaniemsmith1

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So Mackenzie learned a hard lesson
« on: September 06, 2015, 09:45:24 AM »
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  • We found out recently that Mack was going through some of the typical teenage D burn out the last few months. Caught it on accident because she had been, naturally lol, lying.  Basically checking her sugar maybe once a day if that. We still check before we go to bed and sometimes in the night. I will say she was still dosing for most meals based on Dex but she has been running higher the last few months. Probably because it was way less accurate from being calibrated off of false numbers. But at least she was dosing.  So we handled the lying like we always have and told her if she was tired of dealing with the D care that she needs to tell us and we'll do it for. She's always been told that we'll do as much or as little as she wants. Naturally she was always saying that she has it and didn't need our help.

    So we took her to her annual eye exam and got terrible news. She has a cataract in one eye and a possible astigmatism in both eyes. They're going to recheck the astigmatism in a couple of weeks when we get her numbers back where they need to be. They are however certain about the cataract. 

    So my 14!?! year old has a cataract and our mind is blown.   Especially when I think of some of the "bigwigs" in the D world who are always saying that if they have a year or two where they are only checking or dosing once/twice a day they will not have complications. It doesn't happen that fast.  I am here to tell you that it can happen fast. Her last couple A1Cs have been in the 6s and her eye exam last year was normal.  There's not much you can do once they move out, but my new advice for burnout while living at home is to do it for them whether they like it or not.  We learned the hard way that complications can come on fast because that is apparently one more thing with diabetes that  just might vary. 

    It's very sad for her. She feels horrible about it. She has to wear sunglasses every time she goes out, even when it's cloudy and rainy and that makes her feel stupid.  She feels bad and my heart hurts for her. She now owns millions of pairs of sunglasses because I buy her every pair that she thinks is cute trying to make it easier.  We're taking her to a specialist soon and hoping she'll qualify for surgery.

    In other news, we are over the shots with Kayleigh. She needs the smaller dosing ability so we can correct more often. Half units are not for her.  A half of unit of lantus in either direction results in highs or lows. I need to be able to extend boluses for her beloved rice and pizza.  We are ready to pull our hair out and Kayleigh is loving the freedom. lol

    So since we've hit our cap for the year,(don't be too excited, with Tricare the new year starts over next month), we're going to try her on the pod. We are hoping for one shipment of pods for free if it goes through in time. lol 

    Tricare isn't eligible for the cut the cord program (why tricare is even involved in that is beyond me) but insulet said that if we can get the doctor to write the script and push it through tricare, they will give us the pdm for the cut the cord price.  But I'm fully prepared to pay for it full price just to be back on a pump.  And the doc is already working on the script for the pods. We just need to pray tricare won't be a pain in my heiny. Fingers crossed!  <fx'd>

    Kayleigh's not entirely down with the idea but she's always one to take a bribe. lol  We're hoping that not needing to wear a pump pouch and placing the pod discreetly will appease her issues with pumping. I'm not entirely certain that she will go for it because she doesn't really like the dex sensor being attached and the pod being the same but bigger might cause her an issue. But I'm manipulating the situation to the best of my ability by using her love of food and eating seconds after being bolused. lol I'm saying "oh precious I already bolused you. I'm sorry." And when she tries the pod I'm going to say yes to everything.  Even fourths.   <t-up>

    And all of that is why I hate D this month. 

    Wife to my hero, Kevin
    Mom to Mackenzie (14, T1, DX 9/17/12, Pinging Green)
    & Kayleigh (7, T1, DX 11/20/12, Podding)
    www.prncsstefy.blogspot.com
    http://www.facebook.com/GigglyGirls

    Offline andrea

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    Re: So Mackenzie learned a hard lesson
    « Reply #1 on: September 06, 2015, 09:57:05 AM »
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  •  <hug>  I think a couple of weeks isn't enough time... when Annelies was initially having eye issues, it was after dx... doc wanted to wait until her next quarterly a1c... BUT with the cataract that may be why they're reassessing in the couple of weeks... astigmatism may just be a straight up vision thing....

    Tricare isn't eligible for the cut the cord program (why tricare is even involved in that is beyond me) but insulet said that if we can get the doctor to write the script and push it through tricare, they will give us the pdm for the cut the cord price.  But I'm fully prepared to pay for it full price just to be back on a pump.  And the doc is already working on the script for the pods. We just need to pray tricare won't be a pain in my heiny. Fingers crossed!  <fx'd>

    I can call BS here... We did it.  Paperwork went to Insulet... Insulet contacted endo for rx...rx run for authorization... Tricare doesn't do anything other than provide authorization for the pods... you pay the fee and then get the rebate submitted after the criteria has been met.

    Mom to Annelies, 14 (Dx 18 Mar 08~Pumping MM Oct 08-May 12, Omnipod May 12-Aug 13. tSlim Aug 13+ ~Dexcom Oct 11), Katy, 18 (non-D) and Jory (non-D/US Navy)
    God created wine to keep Army Wives from taking over the world
    My blog

    Offline Mich*09

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    Re: So Mackenzie learned a hard lesson
    « Reply #2 on: September 06, 2015, 09:14:22 PM »
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  •  <hug> That is a hard lesson.  And one I'm passing on to my darling son who thinks his noncompliance won't catch up to him.
    Michelle
    Mom to - Jordan 22, Grant (19 dx 9/17/09 MM Revel 6/1/10), Brett 16

    Offline jcsamom

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    Re: So Mackenzie learned a hard lesson
    « Reply #3 on: September 06, 2015, 09:33:05 PM »
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  •  <hug> <hug> <hug>
    Cassie dx 3/18/16 MDI
    Wife of Jason dx 12/14/12 MDI
    Mom of Seth (19), dx 8/24/12 MDI
    Mom of Josh (22), non-d
    http://kdanotdka.blogspot.com






    Offline stefaniemsmith1

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    Re: So Mackenzie learned a hard lesson
    « Reply #4 on: September 06, 2015, 10:27:01 PM »
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  • It didn't make sense to me at all Andra.  But they have this all over their No Tubes Attached literature (the new and less catchy name).

    To qualify, insurance coverage must be verified. The program
    excludes beneficiaries of Medicare, Medicaid, Tricare and any other
    federal or state funded health insurance program. Patients whose
    private insurance precludes it are also excluded from this program.

    We're going to try for it anyway. 

    Wife to my hero, Kevin
    Mom to Mackenzie (14, T1, DX 9/17/12, Pinging Green)
    & Kayleigh (7, T1, DX 11/20/12, Podding)
    www.prncsstefy.blogspot.com
    http://www.facebook.com/GigglyGirls

    Offline andrea

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    Re: So Mackenzie learned a hard lesson
    « Reply #5 on: September 07, 2015, 07:24:21 AM »
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  • Well crap, maybe because it was years ago...not sure why the exclusion...they make their money on the pods

    Mom to Annelies, 14 (Dx 18 Mar 08~Pumping MM Oct 08-May 12, Omnipod May 12-Aug 13. tSlim Aug 13+ ~Dexcom Oct 11), Katy, 18 (non-D) and Jory (non-D/US Navy)
    God created wine to keep Army Wives from taking over the world
    My blog

    Offline KaelynsMom

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    Re: So Mackenzie learned a hard lesson
    « Reply #6 on: September 07, 2015, 09:46:16 AM »
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  •  <hug> <hug> <hug>

    So sorry. Much love to you and Mack.
    -Stephanie  Mom to Kaelyn, age 7 DX 10/31/10




    Offline gsmama

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    Re: So Mackenzie learned a hard lesson
    « Reply #7 on: September 07, 2015, 10:25:36 AM »
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  •  <hug> <hug> <hug>
    Leslie in New Jersey: mom to ava 11 (non-d) and giovanni 13 (dx'd T1D 7/25/07 and Celiac 1/14)

    Offline Tiffany***

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    Re: So Mackenzie learned a hard lesson
    « Reply #8 on: September 07, 2015, 12:52:49 PM »
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  • My insurance excluded us from the cut the cord program too.  Its ok because we didnt much like it. 

    It is frustrating though that insurance has that much say in how I treat my childs illness. 

    Tiffany mom to 4.  T. 9-00 non-d  V. 12-02 dx 12-08  H. 3-07  E. 9-10

    Offline mymomtime

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    Re: So Mackenzie learned a hard lesson
    « Reply #9 on: September 07, 2015, 12:58:09 PM »
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  •  <hug>  <hug>  <hug>  <hug>

    no words, just hugs.

    I hope the pod works for Kayleigh.  We had issues with Lantus 1/2 units as well, she was too high or too low depending on which way we went.  It was very frustrating.
    Jessica
    Mom to Kristen (age 14) d/x 7/25/07 and Nathan (age 12) non-D, and Joseph (age 5)
    Pumping with Animas Ping since 2/12
    Pumped with MM 2/08-2/12

    Offline SarahMay

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    Re: So Mackenzie learned a hard lesson
    « Reply #10 on: September 07, 2015, 01:12:58 PM »
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  • Thanks for sharing honest details... I'm always taking mental notes for the future. It sounds like you guys are handling it really well.  <hug>

    Was also wondering how Kayleigh's pump break was going. All the things you mention were exactly my frustrations before starting pumps. (Now I have different frustrations. LOL)
    Sarah - wife to Aaron, mom to
    Matthew (9) non-D
    Jonah (8) DX 02/05/14 (Animas Ping, Dexcom)
    Isaiah (8) DX 01/10/13 (Animas Ping, Dexcom)
    Gideon (5) non-D


    Offline oddangela

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    Re: So Mackenzie learned a hard lesson
    « Reply #11 on: September 07, 2015, 02:47:44 PM »
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  •  <hug> <hug> <hug> <hug> <hug>

    BUT.... I think the vision things aren't D.  Cataracts aren't usual D complications for young people.  I know people with D complications and they're different.  Ditto the astigmatism. 

    So... it sucks, but I don't think it's D and teen rebellion related. 
    Angela- Mom to S- 8/9/04 (dx 5/4/11)  G- 6/4/08 and L- 4/3/12 and W- 3/18/15

    Offline jcsamom

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    Re: So Mackenzie learned a hard lesson
    « Reply #12 on: September 07, 2015, 03:31:45 PM »
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  • <hug> <hug> <hug> <hug> <hug>

    BUT.... I think the vision things aren't D.  Cataracts aren't usual D complications for young people.  I know people with D complications and they're different.  Ditto the astigmatism. 

    So... it sucks, but I don't think it's D and teen rebellion related.

    I've been thinking about this as well. My brother had cataracts as a young man, not D related. Just regular people vision problems. And it sucks no matter the cause.
    Cassie dx 3/18/16 MDI
    Wife of Jason dx 12/14/12 MDI
    Mom of Seth (19), dx 8/24/12 MDI
    Mom of Josh (22), non-d
    http://kdanotdka.blogspot.com






    Offline shortstopmom

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    Re: So Mackenzie learned a hard lesson
    « Reply #13 on: September 07, 2015, 05:20:30 PM »
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  • <hug> <hug> <hug> <hug> <hug>

    BUT.... I think the vision things aren't D.  Cataracts aren't usual D complications for young people.  I know people with D complications and they're different.  Ditto the astigmatism. 

    So... it sucks, but I don't think it's D and teen rebellion related.

    Been wondering this as well.  I'm not sure about the cataract, but astigmatism is very common.  Everyone in my family has had astigmatism since we were little kids.  So....it's possible that is not D-related, and just a coincidence.  I have also known younger people who got cataracts.   So....who knows if it was really caused by D or not?   Did the eye doc specifically say it was caused by D?   Did she see an optometrist or an ophthalmologist?

     <hug> <hug>
    Nancy
    DX March, 1971 (45 years). Pumping with "Forrest Pump" for 10 years.  Lovin' my Dexcom G4 "Lt Dan".  Mom/Stepmom of 7, grandma of 10.

    Offline andrea

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    Re: So Mackenzie learned a hard lesson
    « Reply #14 on: September 07, 2015, 06:08:36 PM »
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  • My insurance excluded us from the cut the cord program too.  Its ok because we didnt much like it. 

    It is frustrating though that insurance has that much say in how I treat my childs illness.

    Except it's Insulet excluding..it's like that for the copay programs too...automatic exclusion

    Mom to Annelies, 14 (Dx 18 Mar 08~Pumping MM Oct 08-May 12, Omnipod May 12-Aug 13. tSlim Aug 13+ ~Dexcom Oct 11), Katy, 18 (non-D) and Jory (non-D/US Navy)
    God created wine to keep Army Wives from taking over the world
    My blog



     


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